This disease does not have a cure. There is no proven procedures that are effective, there is not really any research that is being done because it is not a priority disease, as like cancer, so no funding is possible. This is what I heard yesterday. There is nothing they can do to help the pain except to put me on a Pain management program that will help me psycologically deal with my pain. He says the program is intense and it will help me to not just sit around a feel sorry for myself. Yea, well Right now I really can't fathom the idea of dealing with this my whole life, especially with a new baby on the way. Will I eventually not be able to pick up my own child? There are about only about 7-8 doctors in the world that even deal with this disease. They will not take Medicaid, but they will take money and a substantial amount of it. I have never felt so alone or given up on. God Help me!
Do I have a right to feel sorry for myself because I feel I shouldn't, but sometimes I can't help myself and I just breakdown and cry!!
Saturday, June 26, 2010
Thursday, June 10, 2010
It's all in my head!!!
So here is the new scoop on my disease.
I went to the doctor, paid by workers comp, and he told me that there is no evidence that the cyst is what is causing my pain, even though I have brought him documentations from a tarlov cyst specialist that says the cyst is causing my pain. So I asked him, in your opinion what is causing my pain and the only thing he keeps coming back with is that it is basically all in my head. He says that taking the medication is causing the pain and because of the medication I have a chemical imbalance in my brain, these are the factors in which causes my pain to exists . So basically I am crazy and time and taking me off my meds will decrease my pain.
Here is my point before I got on meds I was in pain so what cause the pain to start in the first place. He has no answer. I asked him why are we not doing any scientific test to rule out different diseases like fibromyalga or astio arthritis and his answer to that is even if he wanted to order these test to find the root of my problem workers comp. would not approve these test.
So basically I have about 8 months before the statue of limitations runs out threw workers comp. and I believe they are just stalling so that they won't be responsible for any of my medical conditions. I asked him if I came with $100,000 of my own money would he run the test if I asked him and his answer was no. When I asked him why he said because the tests are not going to solve my problem. Again he goes back to talking about meds. and how being on them is the reason for my pain.
BULL SHI*!!!!!!!!
It all comes down to money if I had a lot of it, I bet I wouldn't have been in this much pain for this period of time and I bet they would have ran what ever test were necessary to figure this out.
Why do I feel like I am being taken for a joy ride?
What would you do if you were in my situation?
I went to the doctor, paid by workers comp, and he told me that there is no evidence that the cyst is what is causing my pain, even though I have brought him documentations from a tarlov cyst specialist that says the cyst is causing my pain. So I asked him, in your opinion what is causing my pain and the only thing he keeps coming back with is that it is basically all in my head. He says that taking the medication is causing the pain and because of the medication I have a chemical imbalance in my brain, these are the factors in which causes my pain to exists . So basically I am crazy and time and taking me off my meds will decrease my pain.
Here is my point before I got on meds I was in pain so what cause the pain to start in the first place. He has no answer. I asked him why are we not doing any scientific test to rule out different diseases like fibromyalga or astio arthritis and his answer to that is even if he wanted to order these test to find the root of my problem workers comp. would not approve these test.
So basically I have about 8 months before the statue of limitations runs out threw workers comp. and I believe they are just stalling so that they won't be responsible for any of my medical conditions. I asked him if I came with $100,000 of my own money would he run the test if I asked him and his answer was no. When I asked him why he said because the tests are not going to solve my problem. Again he goes back to talking about meds. and how being on them is the reason for my pain.
BULL SHI*!!!!!!!!
It all comes down to money if I had a lot of it, I bet I wouldn't have been in this much pain for this period of time and I bet they would have ran what ever test were necessary to figure this out.
Why do I feel like I am being taken for a joy ride?
What would you do if you were in my situation?
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