This disease does not have a cure. There is no proven procedures that are effective, there is not really any research that is being done because it is not a priority disease, as like cancer, so no funding is possible. This is what I heard yesterday. There is nothing they can do to help the pain except to put me on a Pain management program that will help me psycologically deal with my pain. He says the program is intense and it will help me to not just sit around a feel sorry for myself. Yea, well Right now I really can't fathom the idea of dealing with this my whole life, especially with a new baby on the way. Will I eventually not be able to pick up my own child? There are about only about 7-8 doctors in the world that even deal with this disease. They will not take Medicaid, but they will take money and a substantial amount of it. I have never felt so alone or given up on. God Help me!
Do I have a right to feel sorry for myself because I feel I shouldn't, but sometimes I can't help myself and I just breakdown and cry!!
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